It’s been a long time; I shouldn’t have left you!

Omg I’m such a bad blog mom! I totally haven’t posted in ages but sorry THINGS HAVE BEEN HAPPENING! 

Earlier this year I got diagnosed with PCOS (Polycystic Ovary Syndrome) and Fibroids. - This was in addition to my diagnosis the year before for Sleep Apnoea. 

It was partly thanks to social media that I came about this diagnosis. A video came up on my feed of a young lady who was talking about her symptoms (excessive bleeding, bloating, pelvic pressure, constantly looking pregnant etc) and all of them rang true to me. So rather than continuing to assume I was just tired, overworked and not well rested (although all true) I decided to go and explore these issues further with the NHS and see if there might be something deeper going on - and there was! 

I went back and forth with tests for weeks, and during that time I received word back from the hospital that I could pick up a CPAP Machine for my Sleep Apnea. The wave of emotion was real. I had waited a year for this call and during that time all I ever heard from people who had read my blog or spoken to me and also had Apnea was “It’s going to change your life”. I was desperate for my life to change, in fact I was stuck, stagnant, literally not moving, barely doing the essential things-I-have-to-do-everyday, but I had no desire to live my life and I was desperate to get that desire back. I was desperate for a good nights sleep. 

The night before I was up talking with someone about which CPAP I’d probably be issued with. We researched and found that the best one is the new Airsense 11, which I thought was hilarious cause what kind of trendy ass treatment machine name is that lmfao. The new and latest trendy things never seem to reach me, so I did some more research into which machine I was likely to get so I could be more realistic and lower my expectations, and saw that it would be a Phillips one. I was happy with that. I didn’t care which one it was going to be, to be honest. I was just desperate for a good nights sleep. 

The next day I headed to the hospital. Deep down, I went there feeling skeptical. I had put so much pressure on this one thing happening, this one day coming, that I felt like something was going to go wrong. Maybe the doctor would be off and I wouldn’t get seen. Maybe I’d accidentally get a faulty machine and I’d have to wait months again for them to swap it. Maybe something would delay me and I’d miss the appointment and not get it at all. But at surface level I was bursting with excitement. I was desperate for a good nights sleep. 

Then boom, I walk in, the doctor is saying ‘Hi’, telling me to take a seat, that she’ll be back in a second she’s just forgotten something. I’m distracted, I didn’t even hear what she said she forgot, cause all I saw when I walked into that room, was A BRAND NEW MUUTHHHAAA FKKKKINNNN AIRSENSE 11 ON THE TABLE!!! I can’t lie (obvs just between me and you) I started crying LOOOOOOL. I actually started crying lmfao. Thug tears ting. But I started to cry. When the doctor come back she smiled really softly and then started to explain how the  machine works, and what’s mad about that is, she must have seen SO MANY PEOPLE see that machine and relief cry, that it’s just a normal day for her. But for me “It’s going to change your life”.

The way I skipped out of that place clutching that Airsense suitcase like my life depended on it. I’m looking over my shoulder as I’m walking to make sure there’s no robbers about. I’m gripsin this ting like it’s a pink Audemars Piguet Royal OAK in this bitch. I got to my car and locked the doors, quickfast. I’m making it home wid this ting, YO! 

Anyway, I set it up, I used it night one, it’s a madness, it is not comfortable. Woke up so many times in the night and dragged the mask off 8 times throughout my 7 hour sleep. Every time I woke up my mouth was dry and my throat was hurting. Completely hated it. Woke up with energy though, so I said okay buddy we’ll try again tomorrow and see if we can do a full night without me dragging you off. 

This was last week Tuesday. I have had a full week with my CPAP now and it’s still uncomfortable, I still drag it off (too often) but with time I will get used to it! But, I AM GETTING THE GOODS NIGHT SLEEP I WAS SO DESPERATE FOR. I wake up with energy, positive energy at that, literal spring in my step and excitement for the day. I been walking around without confusion, without nosebleeds, I haven’t had to write ‘notes’ about ‘what not to forget when you leave the house’ or an hour-by-hour calendar of what I need to do in my day because I AM REMEMBERING BY MYSELF. I AM SO HAPPY. I FEEL ALIVE AGAIN. IT HAS LITERALLY BEEN A LIFE CHANGING WEEK. 

ALS;KDJFHKLS;DKFJKVKDSLKDS

I AM ELATED. I AM SCREAMINGGGGGGG!!!! and I know it could sound silly cause if you’ve never experienced these things before it’s impossible to relate and I get it, but I’m happy and I wanted to share it wid you! 

The Fibroid and PCOS situation is a difficult one, my next NHS appointment for it is August 2026, so another year wait, which is concerning cause the Fibroid is indenting my endometrial cavity (in non tekky terms ITS UNCOMFORTABLE), so I’d rather get it out sooner rather than later but beggars can’t be choosers init. 

In the meantime, I’m following Instagram pages of ladies who are so kindly showing their experiences and what has/ hasn’t worked for them (Major shout out to @dawn_heels) Viola Davis Lori Harvey have recently been speaking about these issues and it’s encouraging, cause one of the most difficult things about it for me is that I’m struggling with weight loss which it doesn’t look like Viola and Lori have an issue wid, so that gives me hope of a #HotGirlSummer beach bod one day lol 

But yeah, like I said I’m only a couple of months into this journey. I’m still learning it and Eat To Live Not To Die have a Uterus Tea and Iron tea that have already made a huge and great difference. Hopefully my CPAP machine will also help make a difference. I’ve made major life changes too which you’ll hear about at the end of the year, but really I just wanted to come here and say; don’t be like me and leave it super long to get checked out when you feel like you’re experiencing medical problems and/or something isn’t right within yourself, trust your tummy. 

And; there’s a petition to Introduce Statutory Menstrual Leave For People With Fibroids and PCOS which needs your signature PLEASE, even if you don’t have them, please think of the gyaldemmmm and get your whole tribe to sign and get it to 100, 000 sigs. 

Please and thank you! 

Sx